Journal Entry: Sun Mar 22, 2015, 1:16 PM
As some of you are aware, I am effectively crippled most of the time. I have severe back pain from a bad injury a long time ago, which has gone with absolutely no treatmenot at all until last year, when I started getting chiropractic care from my awesome chiropractor, but still I'm in incredible pain all the time. Finally found a doctor who actually believes me and he referred me to a pain treatment clinic who can hopefully do something.
I can stand and walk if I need to but I've usually got about 60 seconds before it starts to hurt badly enough to register, by three minutes or so I'm very uncomfortable and after maybe five minutes I've gotten to the point where I really, really need to sit down or I'm going to start getting nauseous. I can force myself through half an hour or so if I have something I can lean on and I really REALLY have to be on my feet, but it is incredibly shitty and if I'm not careful it will trash me for the rest if the day.
I don't have "good days" anymore, I have good hours at the most. Maybe once every three to six months I'll have a day when my pain level is low enough so my natural positive attitude and boundless energy can overcome it and I'm at a fairly tolerable level with only the need for breaks every half hour or hour to sit down for awhile.
Of course, seeing as how doctors have refused to listen to a single word I say for the past ten years I am disabled as far as function goes...but until I can get a doctor to believe me (seriously, what the fluck is wrong with people, apparently I'm "to young" to be sick and in pain.) I'm SOL as far as any sort of actual help, including a handicapped sticker which just requires doctor going "yeah, you qualify". Seeing as how I can't walk all the way from a close parking spot into a stupid store without being in excruciating pain...yeah, I think I need one of those. Point is, unless I'm actually diagnosed as having a problem I can't get anything to make my life easier.
Waiting on a specialist appointment, I'm gonna see if they'll do one for me. Two weeks. Hurry up.
Anyway, we have this 1932 wheelchair someone gave to the studio (people just buy and dumpster dive stuff and bring it to us) which his pretty much saved my life over there, it's the only reason I can get out of the house at all. But being from 1932 it's not in the best shape, has barely at traction, and now one of the wheels is loose and the bolt to tighten it is so stripped out we'll have to replace the entire axle array to fix it.
Well, as it so happens my brother had an engineering project for a curb-jumper for wheelchairs and he found a fairly new one for $50 (yes, it's previous owner died and the spouse just needed the chair gone) it's like a $1,500 chair. Which I offered to buy from him for what he paid, since it was just sitting in his storage room gathering dust.
He brought it out today. Yay!
So if I can ever manage to get my house cleaned up enough I can take it home and then will actually be able to do things in there, I'm quite functional when I don't have to fight through totally blinding pain. I'm feeling really positive about this and it may be enough to get me enough energy to do enough so I can get into a center path of each room, then I can work from the chair or at least have it so I only have to stand for a bit to do stuff then sit and move around.
We're gonna put a bunch of racing stickers and stuff on it, make it all super cool and punk...well, as much as a wheelchair can be super cool.